“My son Alex was born prematurely, weighing less than half a bag of sugar. He was 21-days-old before I held him for the first time. From moments after he was born, Alex lay in an incubator, his tiny body covered with a mass of wires and tubes. Tubes have determined my family’s life for over two years. They have caused so much heartache and trauma for my baby boy, but they are also the reason he is with us today.