Hannah’s scoot for Crumlin
This Sunday the 10th of May marks the 4th anniversary of Hannah Crowley's life-saving bone marrow transplant in CHI at Crumlin. To celebrate this milestone, 4 year old Hannah is going to do a 4km scoot to raise vital funds for CMRF Crumlin.
From Firhouse in Dublin, Hannah became very ill when she was just 4 months old. She was admitted to CHI at Crumlin, and then diagnosed with a rare disorder, Hemophagocytic Lymphohistiocytosis (HLH). HLH is a serious inflammatory syndrome that can cause a strong activation of the immune system resulting in infection or cancer.
"On New Years' Eve 2015 we brought Hannah, at 4 months old to A&E in Crumlin with a high temperature," begins Martina, Hannah's mother, "as first time parents, we assumed we were being overly anxious, and would be sent home. But Hannah was admitted, and after a month was diagnosed with HLH, a rare immune disorder and required months of chemotherapy and other treatments and ultimately a bone marrow transplant in May 2016. She was discharged in June and remained in isolation for a number of months, and was an inpatient on several occasions throughout the next year."
"The hospital quickly became our home away from home. All the staff went above and beyond in their care for Hannah and also looked after us so well. Hannah was linked in with many services including Speech and Language Therapy, dietician and physio and all provided great help, support and advice. During Hannah's transplant, she received massages and reflexology from one of the clinical nurse specialists, despite being only 8 months old. It helped to relax her and ease some discomforts."
Hannah's condition greatly transformed her parent's lives with her mother staying in the hospital to care for her for 6 months, while her Dad continued to work. However, to keep their spirits up and to update their family and friends on Hannah's condition, Hannah's Dad Stephen photoshopped Hannah into funny photos in dangerous scenarios. These photos quickly evolved into a campaign to raise awareness about the global bone marrow registry to encourage people to become donors. When Hannah needed a bone marrow transplant there were 27 million people on the registry around the world but only 3 people were a match and almost immediately 2 of those matches were ruled unsuitable.
"Initially, we were told that when Hannah would receive her transplant that she would be transferred to the UK and would remain there for months. However, in March 2016 Hannah's incredible consultant, Dr. Ronan Leahy, informed us of the amazing news that a donor was found for Hannah on the bone marrow registry and she would receive her transplant in Crumlin. This is one of the hardest journeys any parent has to face and it was made easier with all the help and support from the staff of Crumlin Hospital, we'll be forever grateful to them!"
“Hannah attends [CHI at Crumlin] for regular check-ups and loves coming to see her friends in the hospital, usually in her nurse’s outfit. She doesn't want to leave and often invites staff to come home and play with her.”
Full details about Hannah's 4km scoot and how to donate can be found here: