Conor's Crumlin journey
"Our little superhero Conor turned one year old on May 31st this year. He would not be here today without the team in Crumlin. When Conor was born he was very quickly diagnosed with a Tracheo-oesophageal Fistula, this meant his oesophagus wasn’t formed properly, and an Imperforate Anus, which meant his bottom wasn’t formed properly. His first surgery for both conditions took place when he was only 11 hours old. I couldn’t go to Crumlin with him as I’d had a caesarean section, but his dad was there with him the entire time. I think I was in complete shock! Being a bit numb probably helped me deal with the shock of it all. Over the course of the last 12 months he’s had 8 surgeries, 3 trips to the PICU and a collapsed lung thrown in for good measure.
At one stage last autumn and winter we were driving up to Dublin every three weeks for surgeries. This was especially hard as we have two other boys at home; Liam is six and Daniel is four.
We’ve been looked after by an exceptional surgical team lead by Prof Sri Paran, along with nurses and staff from Nazareth, St Peter's, PICU1, Colorectal and Radiology.
The small touches like the slice of toast brought to you in the morning as you have a sleeping sick baby on your chest, the toys they give out to the kids whenever they can and even the neonatal hats and booties that are donated is what makes this community stand out from any other. They go above and beyond every time.
Conor is doing really well now. We’re really happy with him, he’s so resilient. We hoped to get all the surgeries done before he would remember them so hopefully, all things going well, we’ve done that now. We’ll continue to go for regular check-ups unless anything comes up down the road. Conor is so smiley and happy. He’s been through so much but he’s even stronger for it.
CHI at Crumlin really is a loving, caring community. A safe space for children and their families. We can never thank them enough for all they have done for us and the continued support they provide us even after all major surgeries.
My husband along with friends are part of a club called The Wildfire Guitar Club and they participated in a charity gig and managed to raise €2,500. It’s a lovely way to say thank you to everyone who helped our baby.
Today, we have a healthy happy baby who will never remember the trials of his first year. We, as parents, will never forget!"
Tina Falvey, Conor’s mum.