An unbreakable bond – Oscar and Mya
We all know the power that big sisters have to protect their younger siblings. They’re simply a force to be reckoned with. When 10 year old Mya Hui saw her four year old brother Oscar get sick from kidney disease she decided to donate her long beautiful hair to sick children, and to raise vital funds while doing so for Children's Health Foundation Crumlin.
“When Oscar started to get sick, Mya’s hair was long enough, and she had already decided that she wanted to donate her hair to the Rapunzel Foundation. So she started growing it,” says Michelle, Mam to Mya and Oscar, “then when Oscar started to get sick he was transferred from Tallaght Hospital to Crumlin, she just decided that she would raise money for Crumlin and at the same time donate her hair. It was supposed to happen in April but with COVID19 she ended up growing a little extra bit of hair for the pony tail. She's a selfless child and she was happy to do it. She's just started back in school. She loves to be back with her new hair. She thinks she's really grown up with it all.”
“We only figured it out in March 2019 that Oscar was born with a condition. He started having temperatures and pain in his side. It would go away and then come back. This went on for six weeks, and I brought him to my doctor a couple of times, and then KDoc to try to get to the bottom of it. My doctor then ordered a blood test randomly and it showed high levels of creatinine. He just rang me and told me to take him straight to hospital. He was kept in for a week for more testing and then they finally diagnosed him with kidney disease.
His right kidney was alarmingly small and his left kidney was large, and that was just based on ultrasounds and they needed to do more tests. He had a DMSA scan and that confirmed that his right kidney was pretty much gone. He also had Vesicoureteral reflux (VUR) [condition in which urine flows backward from the bladder to one or both ureters and sometimes to the kidneys]. For Oscar, right now his right kidney is basically a bag of urine so it's all flowing back up. He was then transferred to Dr Mary Waldron in Crumlin, and she's being seeing him. She referred him to Professor Feargal Quinn to have a Nephrectomy [remove the kidney]. Oscar has had his consultation with Professor Quinn, and then the Nephrectomy will happen in November.
I have five kids so Oscar is a twin, 10 year old Mya who is donating her hair is the oldest, 6 year old Megan, 9 year old Noah and Oscar’s twin brother Jacob. Oscar was in and out of hospital. And then his twin brother has his own set of challenges too, and he would be in Tallaght Hospital quite a bit too. I'm so lucky my husband can work from home when needed, and obviously at the moment he has been working from home with COVID19. I've also got two sisters who live beside me. Their kids are in the same school so they can help with school runs so I have a really good support system, and my Mam and Dad help out too.
The lockdown wasn't too bad because they had each other. They were fine and they all actually get on really well. Because we were so afraid with Oscar of catching anything we kept to ourselves. We stayed in the house and I would leave once a week to go shopping. I'm a carer for Oscar so I was able to go shopping during the carer times at Tesco, and that was fine. But as restrictions started easing we allowed the kids to play with their cousins because we knew they were doing the same thing as us, and they only live across the road. We also bought a swimming pool for the back garden, and that kept them occupied and they were happy enough with that. We actually had a good summer. If you ask them they'd say they loved it!
His kidney causes him an awful lot of pain. If he needs to go to the toilet he will be in agony and his side will really hurt. He's only after starting Junior Infants. I was anxious about that but I explained everything to the school and they are very good. They're keeping an eye on him and prompting him to go to the bathroom regularly.
Oscar can be cranky and emotional but that's all down to being in constant pain. He can be brilliant one minute and then turn and cry because he wants his way all the time. But he has all his brothers, sister, and cousins around him protecting him.”
- Michelle Hui, Oscar and Mya's Mam
Funds raised by supporters like Mya make all the difference to supporting CHI at Crumlin.
With your support we will continue to do #WhateverItTakes